{"id":540,"date":"2014-03-31T09:37:30","date_gmt":"2014-03-31T09:37:30","guid":{"rendered":"http:\/\/brennachapman.com\/portfolio\/?page_id=540"},"modified":"2014-03-31T09:39:08","modified_gmt":"2014-03-31T09:39:08","slug":"between-heaven-and-earth","status":"publish","type":"page","link":"https:\/\/brennachapman.com\/portfolio\/?page_id=540","title":{"rendered":"Between Heaven and Earth"},"content":{"rendered":"<p><em>Story and Photos by Brenna English Chapman<\/em><\/p>\n<p><!-- index.php -->\n<div\n\tclass=\"ngg-galleryoverview\"\n\tid=\"ngg-gallery-579-1\">\n\n    \t\t<!-- Thumbnails -->\n\t\t\t\t<div id=\"ngg-image-0\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo1.jpg\"\n               title=\"The elders gave Peter Frakie, a member of the Confederated Salish Kootenai tribe, and Indian name within his tribe. They call him, \u201cSun Child,\u201d which stands for the, \u201cBoy who is born and lives between heaven and earth.\u201d Peter watches two people walking past the window, and in his soft, harsh voice, Peter keeps requesting, \u201cGo for a walk.\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo1.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo1.jpg\"\n               data-image-id=\"170\"\n               data-title=\"photo1\"\n               data-description=\"The elders gave Peter Frakie, a member of the Confederated Salish Kootenai tribe, and Indian name within his tribe. They call him, \u201cSun Child,\u201d which stands for the, \u201cBoy who is born and lives between heaven and earth.\u201d Peter watches two people walking past the window, and in his soft, harsh voice, Peter keeps requesting, \u201cGo for a walk.\u201d\"\n               data-image-slug=\"photo1-7\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo1\"\n                    alt=\"photo1\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo1.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-1\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo2.jpg\"\n               title=\"This replica doll was given to Peter on his birthday last year when he turned twelve-years-old. Kari said she sent a woman a picture of Peter, and the woman sent back the doll, \u201cTubes and all.\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo2.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo2.jpg\"\n               data-image-id=\"171\"\n               data-title=\"photo2\"\n               data-description=\"This replica doll was given to Peter on his birthday last year when he turned twelve-years-old. Kari said she sent a woman a picture of Peter, and the woman sent back the doll, \u201cTubes and all.\u201d\"\n               data-image-slug=\"photo2-4\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo2\"\n                    alt=\"photo2\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo2.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-2\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo3.jpg\"\n               title=\"Peter\u2019s dad. John makes certain that all the liquid he is feeding Peter through his stomach tube is making its way in. Peter receives at least four cans a day of \u201cPedi sure,\u201d which is a very high caloric, because Peter eats so little that is solid. If Peter quits eating altogether, they have to increase the tube feedings. He weighs about 60 pounds.\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo3.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo3.jpg\"\n               data-image-id=\"172\"\n               data-title=\"photo3\"\n               data-description=\"Peter\u2019s dad. John makes certain that all the liquid he is feeding Peter through his stomach tube is making its way in. Peter receives at least four cans a day of \u201cPedi sure,\u201d which is a very high caloric, because Peter eats so little that is solid. If Peter quits eating altogether, they have to increase the tube feedings. He weighs about 60 pounds.\"\n               data-image-slug=\"photo3-4\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo3\"\n                    alt=\"photo3\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo3.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-3\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo4.jpg\"\n               title=\"Every day when John Frakie gets home from working at the University of Montana, the first thing Peter does is ask him to go for a walk, even in the dead of winter. \u201cHe\u2019d rather be outside then inside the house at any time, but we can only take him out when the weather is compatible with his breathing,\u201d says John. \u201c When Peter says he wants to go for a walk, what he really means is push me in the kid cart to go see the horses.\u201d Peter can\u2019t walk more then a half a block without tiring, so John and Peter take turns pushing the Kid Cart, which is a smaller version of a wheelchair.\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo4.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo4.jpg\"\n               data-image-id=\"173\"\n               data-title=\"photo4\"\n               data-description=\"Every day when John Frakie gets home from working at the University of Montana, the first thing Peter does is ask him to go for a walk, even in the dead of winter. \u201cHe\u2019d rather be outside then inside the house at any time, but we can only take him out when the weather is compatible with his breathing,\u201d says John. \u201c When Peter says he wants to go for a walk, what he really means is push me in the kid cart to go see the horses.\u201d Peter can\u2019t walk more then a half a block without tiring, so John and Peter take turns pushing the Kid Cart, which is a smaller version of a wheelchair.\"\n               data-image-slug=\"photo4-4\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo4\"\n                    alt=\"photo4\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo4.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-4\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo5.jpg\"\n               title=\"Kari feeds Peter some purees bananas, hoping it will offer Peter some extra energy for swimming. Everything Peter puts in his mouth has to be ground down so it\u2019s easier for him to swallow.\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo5.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo5.jpg\"\n               data-image-id=\"174\"\n               data-title=\"photo5\"\n               data-description=\"Kari feeds Peter some purees bananas, hoping it will offer Peter some extra energy for swimming. Everything Peter puts in his mouth has to be ground down so it\u2019s easier for him to swallow.\"\n               data-image-slug=\"photo5-5\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo5\"\n                    alt=\"photo5\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo5.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-5\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo12.jpg\"\n               title=\"Peter rests after receiving an injection in the catheter on his chest, meant to help him fight the pneumonia in his system.\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo12.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo12.jpg\"\n               data-image-id=\"181\"\n               data-title=\"photo12\"\n               data-description=\"Peter rests after receiving an injection in the catheter on his chest, meant to help him fight the pneumonia in his system.\"\n               data-image-slug=\"photo12-6\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo12\"\n                    alt=\"photo12\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo12.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-6\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo13.jpg\"\n               title=\"In pain after the injection Peter says, \u201cHurts, Mommy.\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo13.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo13.jpg\"\n               data-image-id=\"182\"\n               data-title=\"photo13\"\n               data-description=\"In pain after the injection Peter says, \u201cHurts, Mommy.\u201d\"\n               data-image-slug=\"photo13-6\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo13\"\n                    alt=\"photo13\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo13.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-7\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo14.jpg\"\n               title=\"The Frakies congregate around the bonfire with friends to warm up, as Peter watches people pass by during the Christmas Tree Lighting in downtown Missoula.\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo14.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo14.jpg\"\n               data-image-id=\"183\"\n               data-title=\"photo14\"\n               data-description=\"The Frakies congregate around the bonfire with friends to warm up, as Peter watches people pass by during the Christmas Tree Lighting in downtown Missoula.\"\n               data-image-slug=\"photo14-5\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo14\"\n                    alt=\"photo14\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo14.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-8\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo6.jpg\"\n               title=\"Kari gives Peter a ride through the halls at C.S.Porter Middle School so that he doesn\u2019t get too tired out for swimming. \u201cOne thing about Peter, he\u2019s always got a lot of stuff to carry, so I\u2019ve learned to have it all, no matter what.&quot;\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo6.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo6.jpg\"\n               data-image-id=\"175\"\n               data-title=\"photo6\"\n               data-description=\"Kari gives Peter a ride through the halls at C.S.Porter Middle School so that he doesn\u2019t get too tired out for swimming. \u201cOne thing about Peter, he\u2019s always got a lot of stuff to carry, so I\u2019ve learned to have it all, no matter what.&quot;\"\n               data-image-slug=\"photo6-5\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo6\"\n                    alt=\"photo6\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo6.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-9\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo7.jpg\"\n               title=\"On his way to Adaptive Swimming at Community Hospital in Missoula, Mont., Peter turns to find out where Gwen Gerber is, who has been his aid for nine years now. \u201c I\u2019ve known Peter for almost ten years now,\u201d Gerber says. \u201cThis will be our ninth Thanksgiving together.\u201d Gerber turns to look at Peter way up in the front of the bus and says softly, \u201cOh, Peter, I wonder what you are going to be when you grow up?\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo7.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo7.jpg\"\n               data-image-id=\"176\"\n               data-title=\"photo7\"\n               data-description=\"On his way to Adaptive Swimming at Community Hospital in Missoula, Mont., Peter turns to find out where Gwen Gerber is, who has been his aid for nine years now. \u201c I\u2019ve known Peter for almost ten years now,\u201d Gerber says. \u201cThis will be our ninth Thanksgiving together.\u201d Gerber turns to look at Peter way up in the front of the bus and says softly, \u201cOh, Peter, I wonder what you are going to be when you grow up?\u201d\"\n               data-image-slug=\"photo7-5\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo7\"\n                    alt=\"photo7\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo7.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-10\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo8.jpg\"\n               title=\"Still laughing because Gwen Gerber is splashing his friend Travis, Peter turns around to smile at his mom, Kari who is standing close behind him holding his portable oxygen tank. Kari\u2019s eyes scan the pool, from Peter, to the other children, back to Peter again. \u201cLook at these children,\u201d Kari says. \u201cThey are angels in disguise.\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo8.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo8.jpg\"\n               data-image-id=\"177\"\n               data-title=\"photo8\"\n               data-description=\"Still laughing because Gwen Gerber is splashing his friend Travis, Peter turns around to smile at his mom, Kari who is standing close behind him holding his portable oxygen tank. Kari\u2019s eyes scan the pool, from Peter, to the other children, back to Peter again. \u201cLook at these children,\u201d Kari says. \u201cThey are angels in disguise.\u201d\"\n               data-image-slug=\"photo8-5\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo8\"\n                    alt=\"photo8\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo8.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-11\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo9.jpg\"\n               title=\"Peter shakes the three plungers he always holds in his hands while he waits for Kari to help him get into his swimsuit. \u201cSkinny little guy, if you had some more meat on you, you wouldn\u2019t be so cold,\u201d Kari said.\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo9.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo9.jpg\"\n               data-image-id=\"178\"\n               data-title=\"photo9\"\n               data-description=\"Peter shakes the three plungers he always holds in his hands while he waits for Kari to help him get into his swimsuit. \u201cSkinny little guy, if you had some more meat on you, you wouldn\u2019t be so cold,\u201d Kari said.\"\n               data-image-slug=\"photo9-6\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo9\"\n                    alt=\"photo9\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo9.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-12\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo10.jpg\"\n               title=\"Peter arms always outstretch when Kari is changing any of the numerous tubes, or the catheter that is beneath his skin. \u201cHe\u2019s got picky finger fingers, so we put cotton on. The acid from his stomach burns his skin and he\u2019s got ulcers so we put powder. The things he\u2019s been through.\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo10.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo10.jpg\"\n               data-image-id=\"179\"\n               data-title=\"photo10\"\n               data-description=\"Peter arms always outstretch when Kari is changing any of the numerous tubes, or the catheter that is beneath his skin. \u201cHe\u2019s got picky finger fingers, so we put cotton on. The acid from his stomach burns his skin and he\u2019s got ulcers so we put powder. The things he\u2019s been through.\u201d\"\n               data-image-slug=\"photo10-6\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo10\"\n                    alt=\"photo10\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo10.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-13\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo11.jpg\"\n               title=\"Peter gags as Kari inserts a tube in the hole in Peter\u2019s throat. He has to be suctioned about six times a day because he has only one functioning lung and it gets tiresome for Peter to breathe. \u201cPeter has never known anything except how life is now,\u201d says Kari. \u201cHe doesn\u2019t know what it\u2019s like not to have feedings, oxygen, and suctions.\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo11.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo11.jpg\"\n               data-image-id=\"180\"\n               data-title=\"photo11\"\n               data-description=\"Peter gags as Kari inserts a tube in the hole in Peter\u2019s throat. He has to be suctioned about six times a day because he has only one functioning lung and it gets tiresome for Peter to breathe. \u201cPeter has never known anything except how life is now,\u201d says Kari. \u201cHe doesn\u2019t know what it\u2019s like not to have feedings, oxygen, and suctions.\u201d\"\n               data-image-slug=\"photo11-6\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo11\"\n                    alt=\"photo11\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo11.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-14\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo15.jpg\"\n               title=\"Peter, and fellow classmate, Shelly Robinson, 9, from Hawthorne Elementary where Peter spends his afternoons, respond to a familiar instrumental from \u201cthe Nutcracker,\u201d as they gather by the old train station the night of the Christmas Tree Lighting in downtown Missoula, Mont.\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo15.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo15.jpg\"\n               data-image-id=\"184\"\n               data-title=\"photo15\"\n               data-description=\"Peter, and fellow classmate, Shelly Robinson, 9, from Hawthorne Elementary where Peter spends his afternoons, respond to a familiar instrumental from \u201cthe Nutcracker,\u201d as they gather by the old train station the night of the Christmas Tree Lighting in downtown Missoula, Mont.\"\n               data-image-slug=\"photo15-3\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo15\"\n                    alt=\"photo15\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo15.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-15\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo16.jpg\"\n               title=\"Kari gives Peter a high-five for blowing out all the candles on his thirteenth birthday cake. Even though Peter won\u2019t eat the cake, he enjoys the parties, and each year that he survives, there is even more celebration. \u201cHe\u2019s really been through the grinder,\u201d said Kari.\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo16.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo16.jpg\"\n               data-image-id=\"185\"\n               data-title=\"photo16\"\n               data-description=\"Kari gives Peter a high-five for blowing out all the candles on his thirteenth birthday cake. Even though Peter won\u2019t eat the cake, he enjoys the parties, and each year that he survives, there is even more celebration. \u201cHe\u2019s really been through the grinder,\u201d said Kari.\"\n               data-image-slug=\"photo16-3\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo16\"\n                    alt=\"photo16\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo16.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-16\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo17.jpg\"\n               title=\"Peter knows all too well about how people come and go. Whenever guests or family members are arriving or departing, Peter will always be found waiting and watching from behind the glass of the bay window in the Frakies living room. Peter waits to hear a certain pattern of beeps from the car horns and always offers a reminder that he expects to hear it. \u201cBeep, horn.\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo17.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo17.jpg\"\n               data-image-id=\"186\"\n               data-title=\"photo17\"\n               data-description=\"Peter knows all too well about how people come and go. Whenever guests or family members are arriving or departing, Peter will always be found waiting and watching from behind the glass of the bay window in the Frakies living room. Peter waits to hear a certain pattern of beeps from the car horns and always offers a reminder that he expects to hear it. \u201cBeep, horn.\u201d\"\n               data-image-slug=\"photo17-3\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo17\"\n                    alt=\"photo17\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo17.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\t\t<div id=\"ngg-image-17\" class=\"ngg-gallery-thumbnail-box\" >\n\t\t\t\t        <div class=\"ngg-gallery-thumbnail\">\n            <a href=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo18.jpg\"\n               title=\"Peter\u2019s mother, Kari, just finished administering an IV which Peter will receive three times a day for two weeks to help him recover from the pneumonia he contracted, which is very serious for a person who can die from a common cold. A tear slides down Peter\u2019s face as Kari asks her usual question. \u201cWho is the most beautiful boy in the world?\u201d\"\n               data-src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/photo18.jpg\"\n               data-thumbnail=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo18.jpg\"\n               data-image-id=\"187\"\n               data-title=\"photo18\"\n               data-description=\"Peter\u2019s mother, Kari, just finished administering an IV which Peter will receive three times a day for two weeks to help him recover from the pneumonia he contracted, which is very serious for a person who can die from a common cold. A tear slides down Peter\u2019s face as Kari asks her usual question. \u201cWho is the most beautiful boy in the world?\u201d\"\n               data-image-slug=\"photo18-2\"\n               class=\"ngg-fancybox\" rel=\"579\">\n                <img\n                    title=\"photo18\"\n                    alt=\"photo18\"\n                    src=\"https:\/\/brennachapman.com\/portfolio\/wp-content\/gallery\/heaven-and-earth\/thumbs\/thumbs_photo18.jpg\"\n                    width=\"120\"\n                    height=\"90\"\n                    style=\"max-width:100%;\"\n                \/>\n            <\/a>\n        <\/div>\n\t\t\t\t\t\t\t<\/div> \n\t\t\t\n        \n\t\t\n\t\t<!-- Pagination -->\n\t<div class='ngg-clear'><\/div>\t<\/div>\n<\/p>\n<p><span style=\"line-height: 1.5;\">When the Frakie\u2019s wake up in the morning, they always have the same hope in mind. That they will walk into Peter\u2019s room, and find that his blankets are still moving.\u00a0 They watch, desperately waiting to see his chest moving up and down before they even get a glimpse of the dawn.\u00a0 Peter, a member of the Salish and Kootenai tribe was given the name \u201c Sun Child,\u201d after much consideration by the tribe because he was born, and lives between heaven and earth with the same unpredictability.\u00a0\u00a0 No one knows whether Peter will be staying, or going. Or whether he will be alive tomorrow.<\/span><\/p>\n<p>When Kari and John answered an ad placed in the newspaper for a long-term caregiver for a Native American child with severe medical problems, they were told upon calling for details that Peter might not be with them for very long. When Kari and John asked their daughter, Jori her permission to take in a foster child with severe medical needs, she gave them the answer they wanted to hear. \u201cYou go get that baby from the hospital.\u201d<\/p>\n<p>That baby was only supposed to live around three months, according to area doctors, and had already spent the first 15 at Community Hospital in Missoula, Mont.\u00a0 He celebrated his thirteenth birthday on November 26.<\/p>\n<p>But like an infant, Peter seldom sleeps through the night.\u00a0 When bedtime arrives Peter can always be heard calling for his father from the couch. \u201cHold Daddy\u2019s chest,\u201d Peter says, and lies in his father\u2019s arms until sleep invades.\u00a0\u00a0 He doesn\u2019t want to be left alone, and John and Kari promised Peter after he was hospitalized that they wouldn\u2019t leave him alone ever again, even for a second.<\/p>\n<p>\u201cHe was smiling the whole time we were at the hospital before we took him home, and when we decided to leave for lunch I remember looking back and he had just visibly withdrawn and lay back down, curled up, and faced the wall,\u201d Kari said. \u201cWhen we got back he just saw us and started shaking the bars of the crib, and ever since then he knows we would always come back for him.\u201d<\/p>\n<p>There are no breaks for the Frakies.\u00a0 To see Peter, you would know why he\u2019s afraid to be left alone.\u00a0 His health is utterly fragile. Peter was born with Fetal Alcohol Syndrome.\u00a0 His frontal lobes are atrophied.\u00a0 He has a tube in his throat.\u00a0 He has a catheter that protrudes from the skin in his chest for needle insertion.\u00a0 He has tubes in his nose to feed him oxygen for survival.\u00a0 He has the papilla virus that interferes with the function of his respiratory tract, and has had over 150 laser surgeries to remove the tumors resulting from the virus.\u00a0 His right lung is deflated and collapsed. He needs to be suctioned six times a day through a hole in his throat. He has a defect in hi s heart, and his heartbeat is not felt in his chest, but on his side, beneath his right armpit.\u00a0 He is fed four cans a day of \u201cPediasure,\u201d through a tube in his stomach because he can\u2019t eat solid food.\u00a0\u00a0 He drowns in fluid when he lays flat too long to sleep.\u00a0 The average cold can kill him.\u00a0 Peter\u2019s voice is soft, but harsh.\u00a0 One has to listen acutely for his calling.<\/p>\n<p>Peter usually wakes himself up between 4 and 6 a.m.; then listens to his favorite opera, \u201cThe Magic Flute.\u201d John believes the music calms Peter\u2019s brain every morning while he eats his scrambled egg with cheese and pepper with a coke, which is the only liquid he will drink. \u201cEvery time he takes a bit, he takes a sip to wash it down like a river because he doesn\u2019t know how to chew,\u201d Kari says. \u201cBesides all the tumors and the tubes, the reason he doesn\u2019t eat very well is because no one ever taught him when he was tiny.\u201d<\/p>\n<p>During the first few months of life, Kari said feeding was not a priority because there were too many other life threatening issues to deal with. If Peter resists food altogether, they increase the rube feedings. While Peter is eating, one of the family&#8217;s two dogs rests its head on Peter\u2019s lap.\u00a0 Peter knows why \u201cKiva\u201d is there, and he looks around the table to see if there is something to feed him as he pats the dog under the table and mutter\u2019s \u201cfriend.\u201d Peter burps and tries to swallow a big gulp of air.<\/p>\n<p>Peter doesn\u2019t have many friends.<\/p>\n<p>\u201cPeter\u2019s never been very interactive with toys,\u201d says Kari.\u00a0 \u201cIt\u2019s difficult to find things that he enjoys because the therapists would bring blocks, or little cars, and it was always for a purpose-to build, or to use as therapy, so because of that I don\u2019t think Peter has ever viewed toys as a very free expression.\u201d But Kari says Peter loves watching videos, looking at books, and listening to classical or Native American music.<\/p>\n<p>Peter has revised words to many songs, specifically \u201cOld Mac Donald.\u201d Peter sings, \u201cOld Mac Donald had a tube,\u201d and he makes the sound of the tubes. Kari thinks that the oxygen tubes have taken a large part in his isolation from other students.<\/p>\n<p>\u201cHe can\u2019t ever just get on a bike to ride away; he just doesn\u2019t have that freedom,\u201d Kari says. \u201cHis oxygen line is his lifeline, he\u2019s tethered to it.\u201d<\/p>\n<p>She noticed last year when she visited Peter\u2019s classroom, that because of the portable oxygen tank Peter had to drag, his hands were never free.\u00a0 So she called the Norco Company to see if they could give the school a big tank with an extra-long tube for the classroom, which has worked out well.\u00a0 Kari says she and John have lost a lot of friends because a lot of people are uncomfortable around sick and disabled children.<\/p>\n<p>\u201cWe\u2019re protective of Peter\u2019s health, but we also want him to experience normalcy as much as possible,\u201d Kari says.\u00a0 Which means they aren\u2019t afraid to tell people not to come over if they\u2019re sick, even though their social life has become essentially non-existent.<\/p>\n<p>When company does come over to the house, or when Peter is expecting either John or Kari to come home, he can always be found by their bay window, waiting, pressed against the glass where he is visible from the driveway.\u00a0 While someone is there visiting, Peter repeats \u201cBeep, horn,\u201d which he waits to hear upon their arrival or departure.<\/p>\n<p>Communicating with Peter is challenging as well.\u00a0 The only time Peter has conversations is when they are scripted word for word ahead of time.\u00a0 Both Peter\u2019s receptive and expressive language skills are delayed, as are his motor skills.\u00a0 But he\u2019s quick to catch onto phrases such as \u201call aboard,\u201d or \u201cParty, party, party,\u201d and \u201cPop, goes the weasel.\u201d<\/p>\n<p>Peter spends his mornings at C.S. Porter Middle School, and his afternoons at Hawthorne Elementary.<\/p>\n<p>\u201cHe loves school, and getting on the bus, \u201cKari says. \u201cHe has a hard time staying on task for any length of time, and I don\u2019t know how much of that is frustration because he really wants to please people; especially grown-ups.\u201d<\/p>\n<p>Peter eats lunch on Fridays with the Native American Club that meets with sixth to eighth grade students, before he heads to Community Hospital for adaptive swimming every other Friday, and then to Hawthorne.\u00a0 Doris Kicking Woman, Cultural Specialist at the Native American club is excited when she sees Peter and Kari.<\/p>\n<p>\u201cYou\u2019re special, Peter,\u201d Doris says.<\/p>\n<p>\u201cWhy?\u201d Peter asks to everything.<\/p>\n<p>\u201cBecause God picked you,\u201d she says, reaching out to touch Peter\u2019s hand.<\/p>\n<p>Kari says Peter is 13 going on 2, because of his questioning, but believes Peter is sometimes grasping much more then everyone realizes.\u00a0 He just has trouble responding to what he hears.<\/p>\n<p>\u201cI wish I would just crawl inside of his brain to see how it works,\u201d Kari says.<\/p>\n<p>\u201cBut because of the damage to his frontal lobes, many of the things we hoped would come, will never come,\u201d Kari says.<\/p>\n<p>As Peter gets on his cart to be pushed down the hall, one of the teenagers in the Native American Club looks at Kari\u2019s white skin and blond hair against Peter\u2019s dark skin and hair and whispers to her friend, \u201cIs that his real mother? He\u2019s lucky.\u201d\u00a0 And another girl responded, \u201cNo, she\u2019s lucky.\u201d Kari says she\u2019s not sure if Peter will ever have the cognitive ability to look at her and John and know they look different. But Kari says often when they are taking walks Peter will see a Native American walking and he\u2019ll point and say, \u201cIndian, Indian.\u201d<\/p>\n<p>The differences between Peter and a normal child the same age are obvious.\u00a0 Peter has never known anything except how life is now.\u00a0 He doesn\u2019t know how it would be to be able to live without feeding, suctions, or oxygen.<\/p>\n<p>He cries when he gets scolded.\u00a0 Tears come down his cheeks the same way he laughs.\u00a0 When he smiles. His eyes get big and crinkle at their corners, and when he laughs no sound escapes, his teeth are just suddenly revealed. Kari says Peter went for so long without ever revealing any signs of distress.<\/p>\n<p>He has no modesty, like any other teenager has when it comes to his body.\u00a0 Peter ironically watches doctor shows and still chews on a certain teddy bear, pacifiers and his blanket.\u00a0 He\u2019s always holding three plastic plungers in his hand, and is never without one of the three, which have deep bite marks, and are worn down at the ends.<\/p>\n<p>\u201cHe loves them like a baby loves its bottle,\u201d Kari says.<\/p>\n<p>The times that Peter\u2019s life is threatened have been the most difficult and heart wrenching for the Frakies, but they say they would do it all over again just the same way.<\/p>\n<p>\u201cI have seen Peter pull through so many times when he shouldn\u2019t have,\u201d Kari says. \u201cYou can\u2019t just give up on him without trying.\u201d<\/p>\n<p>The Frakies are aware now that that what they were told about Peter growing out of his problems was untrue.\u00a0 They have come to face what may lie ahead in the future.\u00a0 Peter is ineligible for a heart or lung transplant because of the pre-existing papilla virus in his system.<\/p>\n<p>\u201cWhen kids reach puberty, the papilla growth is much less aggressive, but in their late teens, and early twenties it exacerbates again, and the papillomas can turn cancerous,\u201d Kari says.\u00a0 \u201cWe belong to a support group on the Web, and they have 2-3 death notices per year between the ages of 17-22,\u201d Kari says, trying to choke back the tears.<\/p>\n<p>Peter walks by with the movie \u201cAnnie,\u201d in his hand and Kari asks him to sing. He sings, \u201cI love ya tomorrow, you\u2019re only a day away.\u201d Kari turns her face slightly away from Peter to gain a more confident tone and excitedly says, \u201cThat\u2019s right Peter, it is only a day away.\u201d<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Story and Photos by Brenna English Chapman When the Frakie\u2019s wake up in the morning, they always have the same hope in mind. That they will walk into Peter\u2019s room, and find that his blankets are still moving.\u00a0 They watch, desperately waiting to see his chest moving up and down before they even get a &hellip; <a href=\"https:\/\/brennachapman.com\/portfolio\/?page_id=540\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">Between Heaven and Earth<\/span> <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":581,"parent":19,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"ngg_post_thumbnail":0,"footnotes":""},"class_list":["post-540","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=\/wp\/v2\/pages\/540","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=540"}],"version-history":[{"count":1,"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=\/wp\/v2\/pages\/540\/revisions"}],"predecessor-version":[{"id":580,"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=\/wp\/v2\/pages\/540\/revisions\/580"}],"up":[{"embeddable":true,"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=\/wp\/v2\/pages\/19"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=\/wp\/v2\/media\/581"}],"wp:attachment":[{"href":"https:\/\/brennachapman.com\/portfolio\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=540"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}